000			02244cam a2200289 i 4500
999			_c374072 _d374072
020			_a9781107020870 (hardback)
082	0	0	_a344.04 _bLOW.P
100	1		_aLowrance, William W.,
245	1	0	_aPrivacy, confidentiality, and health research / _cWilliam W. Lowrance.
260			_aUK, _bCambridge, _c2012.
300			_axiv, 188 pages : _billustrations ;
490	1		_aCambridge bioethics and law
504			_aIncludes bibliographical references (pages 160-175) and index.
505	8		_aMachine generated contents note: 1. Introduction; 2. Data, biospecimens, and research; 3. Privacy, confidentiality, safeguards; 4. Broad privacy and the data protection regimes; 5. Health care, public health, and research regimes; 6. Consent; 7. Identifiability and person-specific data; 8. Genetics and genomics; 9. Safeguards and responsibilities; 10. Data sharing, access, and transfer; 11. Ways forward.
520			_a"The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward"--
650		0	_aMedical records
650		0	_aData protection
650		0	_aMedicine
650	1	2	_aHealth Services Research
650	1	2	_aPrivacy
650	2	2	_aComputer Security.
650	2	2	_aConfidentiality
650	2	2	_aConfidentiality
650	2	2	_aDatabases, Factual
650	2	2	_aHealth Services Research
942			_cBK